• irotsoma@lemmy.world
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    1 year ago

    This is why I don’t bother. I put together a list of things that are typical signs that I have, just to convince myself. It’s actually a negative to get it officially diagnosed since then I’d be considered disabled for all the things that exclude disabled people, but not have any benefit since there’s pretty much nothing positive that is for autistic adults. Better to just keep masked in my public life. Other than social media, I’m not desperate to hide it or anything either.

    • aname@lemmy.one
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      1 year ago

      Probably in the US there is no help, but in other countries, especially in Europe, there definitely is.

      • Lhianna@feddit.de
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        1 year ago

        Well, it’s not much better in Germany tbh. Even getting diagnosed included enormous waiting times and most help afterwards is dedicated to make you able to be part of the workforce.

      • Deestan@lemmy.world
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        1 year ago

        For most things, but ASD is still a work in progress.

        Europe, specifically EU and the EEC, follow the World Health Organization. The medical sources for ASD will then be the ICD (International Classification of Diseases). This thing. It’s still basically on ICD version 10, which was written in the 1980s and first official version was released in May 1990. This classifies Autism as a disorder with “bizarre motor behavior and social coldness in children age 3 or below” and recommending “behavioral therapy” as a treatment. source. It also has Aspberger as “A childhood disorder predominately affecting boys and similar to autism”.

        Anyway, WHO finally managed to move on up to officially adopt ICD 11 in 2022. This has a description of ASD that is more on the level of DSM-V and basic human fucking decency. Does that mean we are on ICD 11 now? Not really. Rollout takes time. National medical services have started making the localized versions needed for the ICD 11 to work in each country, along with translations etc. This is not in place everywhere yet.

        Then there is doctors and psychiatrists who need to catch up to the changes. Specialits are very on the ball, fortunately, but General Practicioner doctors are not. Understandably so as they have “everything” they need to deal with and stay up to date on. It’ll take many years before a general doctor, general psychiatrist, or school nurse can be expected to understand ASD on a modern level.