• 2 Posts
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Joined 1 year ago
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Cake day: June 3rd, 2023

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  • It appears naltrexone is an opiate addiction medicine which would make sense why she would have wanted pain medicine dilaudid.

    She would get into a cycle of pain -> inflammation -> pain -> inflammation that would not stop until she got dilaudid which would stop the pain.

    Naltrexone, while normally for addiction, in the low dose taken isn’t really helpful for addiction.

    The number one side effect is nause, headache. Perhaps I misunderstood. Clarify if you could please.

    She said she doesn’t experience these side effects. It’s worth noting that any side effects experienced in trials must be listed.


  • So, YMMV, but my wife has similar issues with a large number of issues. She’s not celiac (and doesn’t respond badly to bread), but has very similar issues that you have (she responds similarly with vinegars, some oils, and cheeses).

    She swears by low dose naltrexone. Took it for a week until it started working and it’s been a game changer. Prior to LDN, we had an ER visit every month so she could get dilatud (sp?) if her other medicines didn’t work (hyociamine was the “last ditch” medicine). We haven’t had an ER visit since—almost 2 years.

    Sorry you experience this and I hope you get this resolved. If you do go the LDR route, I truly hope it works for you.










  • Add my stories to your list.

    My 3 yo son got diagnosed with Ewing’s Sarcoma and had surgery to remove a chunk of his spinal cord (that’s where the tumor was). He finished his first round of chemo and was scheduled to do some in-patient PT at a facility 0.2 miles away from the hospital he was in.

    • Ambulance ride duration: 30s
    • Ambulance cost: $6000
    • Insurance coverage: $500

    I straight up said “send it to collections. I don’t care. My son has cancer.” They fought for 6 months before going down to $250. I gave in.

    Another: There’s a medication you take to cause your marrow to produce white blood cells quickly (the downside is that your bones feel like your burning—at least that’s how my son described it at 3 years old). This medication saves money in the long term since it means fewer ER visits for a cancer patient.

    Coverage denied. Every. Time. Appealed every time, and got it covered. I probably spent close to 20 hours on calls & on hold just to get it covered for each treatment (~50 weeks I think?).

    I make decent money (by my area’s standards) have very good insurance through my work, too. Despite all that, I had to dip into retirement & college funds to pay for various treatment. Hit out of pocket maximum every time and they always find something to deny.

    It was fucking exhausting. Still is with ongoing issues and regular scans. He’s clear (so far) but man, fuck paid health insurance.